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Advocacy

A d v o c a c y  &  L e g i s l a t i o n

G r a s s r o o t s   A d v o c a c y

We advocate for and with people with brain injury and family members by responding to their challenges and representing their concerns through legislative efforts and active support of programs created for their needs

Action Alert:

On March 29, 2007 Senator Hillary Rodham Clinton (D-NY) introduced the Heroes At Home Act of 2007, a series of initiatives to improve services and support for Armed Forces personnel with TBI and their families.  Senator Susan Collins (R-ME) is an original co-sponsor. BIAA Honorary Spokesperson Lee Woodruff and President/CEO Susan Connors were among the invited speakers at the press event. Together they emphasized the need for public/private cooperation in the provision of post-acute care and called for increased family caregiver training and support. To act on this, please click to the policy page of the BIAA web site.

A Call to Action!

Please call your members of the U.S. House of Representatives to urge them to sign the “Dear Colleague” letters.

Defense & Veterans Brain Injury Center (PDF)
TBI Act Appropriations #1 (PDF)
TBI Act Appropriations #2 (PDF)

If you do not know your members of the U.S House of Representatives, visit the legislative action center and type in your zipcode. The Legislative Action Center also gives you the option to email your representative and provides their contact information to call and/or fax the letter.


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Policy & Legislation

Some of the documents on this page are in Acrobat PDF format. If you don't have Acrobat Reader, you can download it for free by clicking on the Reader icon . click here to download acrobat reader

Public Policy Priorities for 2008

BIAA Press Release: FY09 Budget (pdf) Brain Injury Association of America Condemns President’s Fiscal 2009 Budget.

BIAA VA Regs Comment Letter (pdf) Comments from the Brain Injury Association of America on RIN 2900-AM75-“Schedule for Rating Disabilities; Evaluation of Residuals of Traumatic Brain Injury (TBI).”

 

Public Policy Priorities for 2006-2007

Dignified Treatment of Wounded Warriors Act

On October 1, 2007, the Senate passed its version of the defense authorization bill, including the text of the Dignified Treatment of Wounded Warriors Act, which contains critically important provisions to improve TBI care for returning service members.  The House of Representatives passed its defense authorization bill, which does not contain these critical TBI provisions, in May.  Conferees have now been appointed, as the House and Senate will work in conference to produce a final version of the legislation to send to President Bush.

BIAA has been actively lobbying to urge conferees to retain the Senate’s Dignified Treatment of Wounded Warriors Act provisions in the final defense authorization conference report, and has recently issued an Action Alert urging swift consideration of the defense authorization bill by the House and Senate.”

Letter to Congressional Leaders Urging Swift Consideration of the Defense Authorization Bill. (Word)
CBITF Letter (PDF)
TBI Provisions in the Dignified Treatment of Wounded Warriors Act (Word)

Medicaid Rehabilitative Services Option

The Brain Injury Association of America has submitted comments to the Centers for Medicare and Medicaid (CMS) expressing opposition to the recent Notice of Proposed Rule Making (NPRM) that would cut an $2.2 billion from Medicaid over five years by restricting access to services provided under the Medicaid Rehabilitative Services Option.  The Medicaid Rehabilitative Services Option is used to support community-based rehabilitation services and is a valuable mechanism for helping many individuals with traumatic brain injury regain and/or maintain their maximum level of independent function.

BIAA Comments on the Medicaid Rehabilitative Services Option

Heroes at Home Legislation

On March 29, 2007 Senator Hillary Rodham Clinton (D-NY) introduced the Heroes At Home Act of 2007, a series of initiatives to improve services and support for Armed Forces personnel with TBI and their families.  Senator Susan Collins (R-ME) is an original co-sponsor. BIAA Honorary Spokesperson Lee Woodruff and President/CEO Susan Connors were among the invited speakers at the press event. Together they emphasized the need for public/private cooperation in the provision of post-acute care and called for increased family caregiver training and support. To view the press release conference, go to: http://www.youtube.com/watch?v=lKbHwJFJd0w
 
BIAA proudly endorses the Heroes at Home Act of 2007 as a critical step forward in meeting needs of service members with TBI.  The bill contains two key provisions of interest to BIAA:

  • Implementation of an objective, computer-based assessment protocol to measure cognitive functioning both prior to and after deployment in order to improve the screening process for TBI in soldiers deployed to Iraq and Afghanistan.
  • Establishment of a Traumatic Brain Injury Family Caregiver Personal Care Attendant Training and Certification Program, which would train and certify family caregivers of TBI patients as personal care attendants, enabling them to provide quality care at home while also qualifying for compensation from the VA.

Note:  The legislation specifies that the curricula for the TBI Family Caregiver Personal Care Attendant Training and Certification Program “shall incorporate applicable standards and protocols utilized by certification programs of national brain injury care specialist organizations.”
 
BIAA supporters can take two key actions to support this bill:
 
1 - Initiate a letter-writing campaign as soon as possible generating short notes from brain injury advocates across the nation thanking Senator Clinton for introducing this bill and for her leadership on brain injury issues. Click here for a sample thank-you letter to Senator Clinton that can be used by brain injury advocates. (Word Doc)
 
2 - Encourage brain injury advocates to write to their Senators and encourage them to   cosponsor the Heroes at Home Act of 2007. Click here for a sample letter that can be used by brain injury advocates to ask their Senator to cosponsor the Heroes at Home Act of 2007. (Word Doc)

TBI Act

TBI Act Appropriations

Archived TBI Act Documents:

Traumatic Brain Injury Act Appropriations

2006 Fact Sheet

Traumatic Brain Injury Act Reauthorization

2006 Fact Sheet

Traumatic Brain Injury (TBI) Act and Related TBI Appropriations
FY 1997-FY 2007

Congressional Brain Injury Task Force TBI Act Appropriations Request

2006 Fact Sheet

TBI Model Systems

2006 Fact Sheet

Brain Injury and the Military

2006 Fact Sheet
ABC News Document
FY 2007 DVHIP Conference Letter

Congressional Brain Injury Task Force

List of Task Force Members

Other Policy & Legislative Issues

Elevation of NCMRR to Institute Status

Follow Up from Meeting on Rehabilitation and Disability Research at NIH

Independent Status For The NIH National Center For Medical Rehabilitation Research (NCMRR)

Draft Membership Letter

Impaired Consciousness

BIAA Position Statement on Impaired Consciousness
Memo to Affiliates on Mrs. Terry Schiavo

Medicare

2005 Fact Sheet

75% Rule

75% Rule sign-on letter
American Academy of Physical Medicine and Rehabilitation Letter
Consortium for Citizens with Disabilities Letter

New Estimates of the Impact of Enforcement of the “75% Rule” on Inpatient Rehabilitation Services Volume
, September 2005, THE MORAN COMPANY

Rehabilitation Policy Roundtable Discussion, Background Memorandum, September 22, 2005

Rehabilitation Policy Roundtable - Background and Analysis of Major Threats to Rehabilitation, September 22, 2005, Peter W. Thomas, Esq., Powers, Pyles, Sutter and Verville, PC, Co-Chair, Health Task Force, Consortium of Citizens with Disabilities

Social Security Reform

2005 Fact Sheet

Policy Presentation

The Long & Winding Road in Brain Injury:  How Our World Is Changing.  Maryland Rehabilitation Association/Department of Rehabilitation Services. Keynote presentation by Susan H. Connors, President/CEO, Brain Injury Association of America, November 2, 2006. Click here for PPT file (2.6 megs)

 

Online Advocacy Tools

L e g i s l a t i v e   A c t i o n   C e n t e r

Legislative Action Center Link The National Brain Injury Association maintains a terrific online advocacy resource called the Legislative Action Center where you can enter your zip code, find out about your state representatives and contact them regarding issued that are of great importance to you and the future of the brain injury community. Simply click on the image of the Capitol building.
 

Other Local Advocate Groups

http://www.peoplefirstsv.com

www.peoplefirstofwashington.org

http://cordwa.info/

http://www.arc-spokane.org

 www.abilitiesconsulting.org

http://www.ddc.wa.gov

www.DisabilityRightsWA.org

www.inclusiondaily.com

 

This site is dedicated to Alexis, Arionna and Carey from the extreme loss and pain their family had to go through due to lack of imformation in hopes that it can help save other families who will be going through a TBI


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